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A Tiny Miracle

I vividly remember the first time since JJ was diagnosed with GBM that someone asked me if JJ and I were going to try to have more children.  It was […]

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The Waiting Room

I’m not sure if this happens to everyone, but my mind always seems to wander as we sit in the waiting room at MSK.   As the assistants repeatedly call out […]

Spinal Tap March 2017 (2)

March Madness

It feels like forever since our last update.  We’ve had our ups and downs the last few weeks.  Should I start with the good news?   The good news… JJ […]

lions & tigers & bears

Chemo, Radiation, & Immunotherapy…Oh My!!!

  Hi Friends, When JJ was first diagnosed we were told that you only get one shot at radiation with brain cancer because the brain cannot tolerate too much of […]


2016 Grand Mal Seizure & Surgery

Thank you to all of you who have been following my battle against brain cancer. Your love and support brings us so much strength. I wanted to share a few […]


Jacksonville Spartan

This past weekend, I had the opportunity to run a Spartan race with my brother down in Florida. It was perfect weather and the course resulted in one of my […]


NJ 101.5 Radio Interview


Chasing News My9 NJ Interview

We had the opportunity to meet with Sibile Marcellus from Chasing News last week to discuss the dangers inherent in legalized assisted suicide. Here are just a few… 1) Doctors […]


Man of Steel – JJ’s story


MK-1775 Clinical Trial

Several people have asked for more specifics about the trial.  So, I’ll try my best to explain it… JJ started the MK-1775 clinical trial at Memorial Sloan Kettering 2 weeks […]


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