I vividly remember the first time since JJ was diagnosed with GBM that someone asked me if JJ and I were going to try to have more children.  It was […]

I’m not sure if this happens to everyone, but my mind always seems to wander as we sit in the waiting room at MSK.   As the assistants repeatedly call out […]

It feels like forever since our last update.  We’ve had our ups and downs the last few weeks.  Should I start with the good news?   The good news… JJ […]

  Hi Friends, When JJ was first diagnosed we were told that you only get one shot at radiation with brain cancer because the brain cannot tolerate too much of […]

Thank you to all of you who have been following my battle against brain cancer. Your love and support brings us so much strength. I wanted to share a few […]

This past weekend, I had the opportunity to run a Spartan race with my brother down in Florida. It was perfect weather and the course resulted in one of my […]

Several people have asked for more specifics about the trial.  So, I’ll try my best to explain it… JJ started the MK-1775 clinical trial at Memorial Sloan Kettering 2 weeks […]